What’s it like living with alopecia?

What is Alopecia?

Alopecia an autoimmune disorder that causes the immune system to attack the hair follicles resulting in hair loss.

My Journey

I was eight-years-old when I was diagnosed with alopecia. From a young age, I struggled with my appearance, self-consciousness, and depression.

I actually hate this photo. I know exactly the things I was dealing with at this time. Despite the smile, when I look at this photo I can see the pain of all the things I was going though but never articulated. I disliked my appearance and lacked the self confidence to be my authentic self.

I was lost in the disease before ever finding myself.

My parents were buried in treatments and medical jargon. Words like “Minoxidil” and “corticosteroids” were thrown at them, while my quality of life was in their hands. I was so overwhelmed by the diagnosis, swept along by a great current. I was lost in the disease before ever finding myself. I was lost before I truly understood what I needed to thrive with alopecia. I could have used some guidance. My parents could have used some guidance. I’m sharing my experiences to help guide you.

Alopecia kept me focusing on my outward appearance, constantly comparing myself to others, and living in fear of what others would say about me. I was clinging to those around me for comfort, giving them my time and attention, hoping one day to find what I was missing. But when no one was around I was lost, lonely, and depressed. 

Discussing the hairless topics. Growing from the conversations.

With the help of powerful therapy sessions and some honest conversations with friends and family, in 2020 I started a journey of reflection and self-love. I resolved to make a conscious choice to live with intent, worry about myself, and unlock my potential to thrive. 

I found a sense of inner peace.

As I begin to apply the lessons I learned, focusing my time and attention on building strong communities where you’re understood, appreciated, and free to be yourself, I found a sense of inner peace. I stopped living passively, waiting for things to change, and decided to take action. I decided to thrive with alopecia but most importantly, thrive with myself.

I’ve learned a lot since diagnosed with Aloepcia Areata. I’m here to bare it all with you. Today I am happier with myself but that confidence was built through honest conversations, great literature, and strong communities.

It’s not just about hair. It’s about confidence, identity, representation, and self love.

- Gabe